We've been trying a lot of new ideas and discarding things that haven't worked as fast as we can. We've been trying to get more steady streams of income to help folks, and to get help to them in a more organized fashion. And in so far as we can we moved toward our gols. Some of you have asked why there isn't more blogging... and the truth is, as important as it is to get the word out, it's more important to do the work. And so that's what happens... we'll work on being more efficient this year, but we have a lot to try and accomplish. Catch you soon. To catch news of the wider community you can still check out this feed., and updates to software and stuff here.
Check out our new tweet aggregator! It follows us as well as @fatcyclist. We can add others as well as time goes on... We totally ripped off the interface so we're asking permission but we may have to change it around. For now check out the start...
Update: Kyle Meyer was kind enough to allow us to use his design! Thanks Kyle! Onward.
There is no beautifier of complexion, or form, or behavior, like the wish to scatter joy and not pain around us.
Progress has been slower than I'd like lately. But progress is being made. We're looking forward to an awesome 2010. Our first app (an iPhone app) should be available soon. It'll help keep track of what's going on here for now. Then we hope to have a few more bits and pieces, and in classic emergent style, we'll see if life doesn't begin pulling things together. There are some products in the pipeline as well for VividExcellence to sell to fundraise for us. Nice!
I'm really hoping to be able to do this a lot.
Thank you to Lee Bankewitz, Evan Closson, and Mark Zuneska for making this personal and human from the very start. Thank you to Jenni Laurita for her help getting the first product into production. Thanks to Brent Simmons and the TapLynx team for their help. Thanks to Bob Calvano for taking the time to work on some designs to help us get the word out.
To love life, to love it
even when you have no stomach for it.
Everything you’ve held dear,
crumbles like burnt paper in you hands.
Your throat filled with the silt of it.
When grief sits with you , its tropical heat
thickening the air, heavy as water
more fit for gills than lung;
when grief weights you like your own flesh
only more of it, an obesity of grief,
you think, How can a body with stand this?
Then you hold life like a face
between your palms, a plain face,
no charming smile, no violet eyes,
and you say, yes. I will take you
I will love you, again.
- Ellen Bass
Two separate occurrences. Many years ago a friend lost his wife to cancer after a courageous battle. Years later a coworker uproots his family from one coast to another to care for a loved one. Another friend spends a year going through breast cancer related trauma before, "at least for moment" (her words) she's pronounced cancer free. My wife (and therefore I) have had a few scares in the last few years. Another friend and former coworker now has a rare childhood cancer though she is not a child (although she is quite rare and special). She has a one year old child of her own though, and is battling through a year (!!) of chemo and stuff.
Sadly I could continue.
Another friend has been raising enormous amounts of money for cancer victim support and research for many years, and his efforts, and all of these great people inspired me to add my own efforts to the pile. And I wrote some software to help connect a few folks. But for technical reasons I won't bore you with, the service wasn't up to the task. So I tore it down, and have plans to rebuild. I needed to wait though because *my* service was built on another service, and that service wasn't up to snuff. So I'm waiting.
But the idea is still there. To build simple tools that join communities together painlessly for as long they're needed. To help support the warriors, and to raise money to kill the disease, and support the families in their battles.
We are not the goal, or the focus, or really anything at all...just people who want to help. And we are quietly helping. More soon.